Sunday, October 14, 2012

Resources

In addition to the NOCC (national ovarian cancer coalition) american cancer society and regular stuff see everywhere, two specialized groups: Immerman's Angels - pairs cancer patients with others in similar situations. Found the person they paired me with very helpful. She helped me let go of a way in which I was blaming myself for not getting genetic testing earlier (she had it), because they would have monitored me differently (she was monitored closely) and still ended up with 3c cancer. Another important resource that I am going to get more involved in after treatment is FORCE, for women who have the genetic issues I had, and help women understand their risks, get tested, get monitored, get educated, take action, as well as (especially for me) engage in the legal issues surrounding genetic problems i.e. discrimination, patents and so on.

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